Insights that drive change.
Our Advisory Council plays a crucial role as strategic partners in enhancing our engagement with the global patient and caregiver community. They ensure that our efforts align with their specific needs, helping us strengthen our commitment to this community while gaining a deeper understanding of their unique challenges and concerns.
Patient and Caregiver council Members
CHRISTIAN JOHN LILLIS, BA Co-Founder and Executive Director, Peggy Lillis Foundation
Patient Advocate
PHIL GATTONE, M.Ed. President, Elevate for Impact Partner, The Talk About It! Company
CEO, National Bleeding Disorders Foundation
Parent/Carer of Child with Rare Epilepsy
ALISHA LEWIS, MS, ACSM-EP Founder and CEO, Genèsic Nonprofit Organization
Patient Advocate
SUE KOOB, MPA CEO, Preventive Cardiovascular Nurses Association
Nurse Advocate
JEN GRAND-LEJANO Government Relations Director, American Cancer Society Cancer Action Network
Oncology Policy Strategist
NEDA MILEVSKA KOSTOVA, Ph.D Board Vice-Chair, IAPO
Vice-President, Health First Europe
Consultant, World Health Organization
Parent/Carer of Child with Rare Condition
ARYA SINGH, MPH Expert Patient, Spinal Muscular Atrophy Author, Courageous Calla & The Clinical Trial
MARY KEMP, BA Grassroots Advocacy Manager, American Cancer Society Cancer Action Network
Oncology Patient Advocate
We partner with patient organizations spanning diverse therapeutic areas and regions.
Shared Vision
Empower patients and caregivers to impact industry and government strategy that enhances patient-centered and equitable care
Goals and Priorities
Create best-practice patient and caregiver engagement principles for the industry
Enable patients and caregivers to shape medicine development and be equal partners in care
Deliver patient and caregiver-centered care
Strengthen education and advocacy capabilities and communications
Create and publish joint thought leadership
We value healthcare organizations’ efforts to create and maintain initiatives that promote quality care for all individuals. Our expert advisors help us ask the right questions, engage effectively with patient communities, and share learnings and best practices.
HEALTH EQUITY ADVISORS
APRIL AVILÉS, Ed.D., MPH
Founder/CEO, Advancing Racial Equity Consulting
DENISE OCTAVIA SMITH, MBA, BS, CHW, PN, SFC
Executive Director, National Association of Community Health Workers
SHARON G.E. WASHINGTON, Ed.D., MPH
Founder/CEO, Sharon Washington Consulting